I was diagnosed with systemic scleroderma in 2009, just a few months after my wedding. I was devastated, and the wonderful people of the National Scleroderma Foundation Oregon Chapter took me in and let me know that I was not alone. 13 years later, I am the Chapter Advisory Chair of the Oregon Chapter of this amazing and inspiring organization.
Scleroderma affects at least 300,000 people in the US alone, and yet most people have never heard of it. Sadly, even many medical professionals are misinformed or just flat-out uninformed, and it often goes undiagnosed or poorly treated.
The all-volunteer Oregon Chapter provides support and education to scleroderma patients, and raises funds for research. Your donation could fund the cure!
Please consider making a donation, or walk with us and help raise money that will go toward supporting the National Scleroderma Foundation Oregon Chapter!
To register to walk with us click on "Join Christina's Team" to the left.
To make a donation to my personal fundraising efforts, click the "Donate Now" button!
Raising money for scleroderma research is so important, but to me awareness is even more important. So if you can't come walk with us in June, and you aren't able to make a donation to my fundraiser, then I am begging you to PLEASE take a few minutes out of your day to just do a small amount of research on scleroderma. It is so much more than just "hard skin."
To learn more about scleroderma or the National Scleroderma Foundation, please visit national.scleroderma.org today!