Welcome to My Personal Stepping Out to Cure Scleroderma Page!
Autoimmune diseases are scary and unfair. When I was diagnosed, there was very limited information on them. They are all so similar but so different in every case. Every person struggles differently (I don't believe in suffering). No one symptom has the same reaction in two different bodies. There are things wrong with my body that I will never understand. My very first symptom showed up in 4th grade. At least that's what I believe. I wasn't formally diagnosed until I was 21. Looking back, knowing what I know now, there were always signs, but nothing was alarming enough to put together. Between 20 and 23 I lost 60 pounds in less than 6 months. I had my gall bladder taken out and developed chronic kidney disease from a blood pressure of 215/175. I was unable to do much on my own for a few years in the beginning. Then I had the Al plateau. They say if you're super sick in the beginning and you make it to the plateau, you're most likely going to make it. At least for a while. I've had many close calls and many days and nights that I barely came out of. I've also been blessed to have been able to share my experience with others who struggle. I've been able to comfort people in their last days. I participate in research trials and I hold on for dear life. I live with many long term effects every day. Scleroderma is sneaky, progressive, chronic and potentially fatal. It doesn't get the attention it deserves. So please help me spread the word and participate in the research efforts so we can somedav find a cure for this and so many other autoimmune diseases
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