Hi thanks for taking the time to visit and hopefully contribute to my team. My name is Claudette, I am 15 years old, and I have had scleroderma for 6 years. Other than taking medicine constantly, I am a pretty normal kid with friends and a love for photography. So I really didn't think much of it when I was 9 and my mom first noticed what we later called "the weird bug bite". She took me to my pediatrician who had us go to a dermatologist who diagnosed me first with Scleroderma. But when my mom questioned what it was (and I was busy trying to figure out what crazy word she just said) the doctor's response was only that we should not worry and that it needed a special cream to make it go away. Ofcourse my mom was skeptical, so she immediately called my aunt (who is a nurse at Boston Children's hospital) to ask her about the strangely named "thing" I had. My aunt asked her doctor friends all about the disease, discovering that not only did I have to treat the disease, but one of the country's top specialists was only 15 minutes away! I am so lucky that we caught this disease early and have been doing very well since then. But so many kids, families, and even doctors are still confused on what Scleroderma is and how to treat it. So help all of us by donating to find a cure to the weird sounding disease!
Donating through this site is simple, fast and totally secure. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.
If you would like to join me and my friends to help raise funds, please click on “Join My Team” and follow the directions.
Please don't be shy to share this with anyone who you think might want to help.
Your support means the world to me!
Thank you, Claudette
