Diane Lee's team Team Page

Hey there!

Thank you for visiting my personal fundraising page for information about supporting the scleroderma patients and research into a cure for this disease.  For our 15th Annual DFW Stepping Out to Cure Scleroderma event - which is a Virtual event this year to keep Scleroderma patients with compromised immune system safe, and you too. I am trying to raise $3000 by June 29 (World Scleroderma Day)!  I will match all contributions up to $3000.

I've had limited scleroderma for 30 years, and since I have a "limited" or light form of the disease that affects primarily my face and hands and digestive system so far, I still have the energy to volunteer as the Advisory Committee Chair (previously titled President) of the National Scleroderma Foundation Texas Bluebonnet Chapter. The National Scleroderma Foundation funds research into scleroderma, supports patients and their families through support groups and reliable information about the disease and provides education events & opportunities. We only have one part-time paid office manager in Texas so that your donation goes directly to support patients and help our national office fund research.

The Foundation has the highest rating with www.guidestar.org (check it out >>. https://www.guidestar.org/profile/52-1375827)

If you can, I'd love for you to join my team for $20 (and get a tshirt for $10) and maybe we can walk on Saturday, June 25, or some other day, and catch up!  Let me know and I'll come by and hang out or we can take a walk together!

You can also donate without joining my team you want to help us with patient and family support, education events and research. Scleroderma is such a rare disease that we don't receive funding from the National Institute of Health, and only two (just two) medications are approved specifically for scleroderma.  The National Scleroderma Foundation has a rigorous peer-review process of funding research into the cause, treatment, and hopefully the cure of scleroderma. Significant progress has been made recently into treating fibrosis in the lungs, which can often be fatal.

But most of all, I would ABSOLUTELY LOVE YOUR FOCUSED PRAYERS through the month of June and after, which is Scleroderma Awareness Month. WE KNOW THAT PRAYER CHANGES THINGS!

If you've seen what Scleroderma does to me, you've seen the very mildest form of the disease. Many, many have it much, much worse. Pray for them, for their doctors and medical practitioners, for researchers, for their families and caregivers.

Pray for a cure, or discovery of the cause of the disease; for researchers to have extraordinary wisdom from God to discover new insights; for loosening of the permanent constriction in patients hands; relief from the pain that patients endure; reversal of the fibrosis that builds up in some patients lungs, hearts, gastro system and kidneys; especially the lungs - that is what most often kills Scleroderma patients. For those undergoing stem cell transplants and lung transplants - that the transplants will not be rejected or that the new lungs and organs will not get the same fibrosis.

If you are able and want to donate - Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.

Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.

Help me bring more awareness to scleroderma so we can find a cure!

Much love, Diane Lee
817-637-5485
dlee@scleroderma.org
dianelee8@gmail.com