In 1983 I was first diagnosed with Raynauds disease. It took, what seemed like a lifetime to find out why I was so tired and in so much pain. Every time I went to the doctor's complaining of several different symptoms they essentially told me it was in my head and nothing was wrong with me.
In 2016, I went to see a naturopath hoping that she would have answers for me. When the blood test's where done, she noticed something unusual and referred me to the U.W. Medical Center to see a Rheumatologist. After years of suffering I was finally diagnosed with Scleroderma, lung disease and digestive issues and was put on several medications.
I will never be cured or be myself again. Having this disease has completely changed my life. I quickly became aware of and came to grip's with the reality that most others don't experience until much later in life. My signs started at age 7 (I couldn't handle the cold and my hands turned purple with excruciating pain). The reality is that we don't live forever; the reality is that we don't know what tomorrow will bring. Disease or no disease, I could be gone tomorrow. This disease or its drastic treatment could kill me, or I could be hit by a bus tomorrow. Either way, nobody knows for sure what tomorrow will bring.
Enjoy life and all it has to offer. Enjoy your friends and family (even the annoying ones), sight see, and look at nature. Do what makes you Happy.
Thank you for visiting my personal fundraising page to support the "Stepping Out to Cure Scleroderma" Virtual Walk!
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.
If you would like to join me and help raise funds, please click on “Join My Team” and follow the directions.
Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.
Help me bring more awareness to scleroderma so we can find a cure!
Thank you for visiting my personal fundraising page to support the "Stepping Out to Cure Scleroderma" Virtual Walk!
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.
If you would like to join me and help raise funds, please click on “Join My Team” and follow the directions.
Please help today! I sincerely appreciate your support, and please share this with anyone who you think might want to help.
Help me bring more awareness to scleroderma so we can find a cure!