My scleroderma story continues!
I was diagnosed with systemic scleroderma and myalgia in July 2011. I have been an advocate for scleroderma since my diagnosis and participated in five Stepping Out to Cure Scleroderma walks from 2012-2016 and one virtually in 2021. Jamie's Krew has raised over $9,500 in that timeframe to help patients and their families with education and support groups, as well as public awareness, improve treatments and help fund research to some day discover the cause and find a cure. I started a support group in Kansas in 2014 and attended the National Conference in 2015. This year I am helping with some of the planning for the Stepping Out Kansas City event.
I invite you to be a scleroderma advocate! There are many ways to do so......
1. Join my team and walk with me on June 11th
2. Make a donation in honor (or memory) of someone with scleroderma
3. Wear teal some day in June
4. Say a prayer for all scleroderma patients
Thank you! God Bless!