Welcome to My Personal Stepping Out to Cure Scleroderma Page!
Thank you for visiting my personal fundraising page to support the "Stepping Out to Cure Scleroderma" event!
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to support me and help raise funds for scleroderma patients. To make a donation, click the "Donate Now" button that appears under my photo. Then, just follow the instructions.
If you would like to join me virtually and walk or walk with me in MN this year and help raise funds, please click on “Join My Team” and follow the directions.
I sincerely appreciate your support, and please share this with anyone who you think might want to help.
Help me bring more awareness to scleroderma so we can find a cure!
My Story: ‘It takes a Village’. I was diagnosed with Scleroderma 16 years ago which effected the thickening of my skin and made it difficult to do many of my favorite activities. I would get cold much more olten and had to be proactive in staying warm. It was managable.
But in the summer of 2018 the hardening internalized and started effecting my organs. The biggest one was my lunges and I developed pulmonary fibrosis. My lungs are not at full strength. I am seeing two Nationally renowned doctors at the Unifvesity of MN. I am taking a medication that is attempting to slow down the deteriation of my lungs, but it significantly lowers my immune system. I need to also sleep at a 45 degree angle to avoid things flowing to the wrong places.
So in January 2019 after our son’s how about ‘The Village’s’ suggestion, my kids drove with me down to The Village’s in FL. We bought our house in April.
In 2020 COVID really challenged me to keep my lungs healthy. I decided to stay with my FL family. When life gives you lemons, Biller Circle is a great place to make lemonade (or lemon snowballs). I now split my time between 2 terrific homes.
Fatigue has become the latest challenge. I reduce my hours last fall & was blessed to be able to retire in January 2023.
They call Scleroderma the "designer disease" because it effects everyone differently. Your body makes too much connective tissue called callogen creating the hardening.
I appreciate all those who are walking on this journey with me - I have the BEST support system EVER! Thank you for being part of that. Your prayers, good wishes, thoughtfulness and friendly smiles mean more than you will ever know. It takes a Village!
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