I can't believe how my life has changed since I found the Heartland Chapter!!!
I am no longer alone!
I have a rare form of Localized Scleroderma that was diagnosed around age 7...that would around 1959!
Localized Scleroderma is (usually) mostly cosmetic and usually doesn't attack the internal connective tissues.
"En Coup de Sabre" (slice of the sword), is the brown line that runs down the middle of my forehead and into my scalp. I also have Morphea which runs along-side the Linear Scleroderma on the left side of my forehead and scalp.
Unfortunately many of the other group members have systemic scleroderma and are
fighting for their health and/or lives.
I didn’t even know there were other people with scleroderma or a Scleroderma Foundation until 2013!
There are also communities on Facebook where my newfound "family" and I can communicate publicly or privately, the
“Des Moines Scleroderma Support Group” and “Heartland Chapter Scleroderma Foundation”
Imagine further my AWE in not only making new friends that have a common circumstance and goal, but becoming immersed in the Scleroderma world by "Painting Away Scleroderma",
being elected to the Board of Directors of the Heartland Chapter and becoming a winner on the DoctorOz.com True Beauty Contest!!!
Advocating for Scleroderma in Washington D. C. was AWESOME!!!
Imagine going from 0 mph to 100 mph in the mere blink of an eye...that is how I feel! What a RUSH!
I decided in 2013 that I would do everything within my power to help raise awareness (no one should be alone), and to raise funds to educate, support, and to find a cure.
If you can not join me for the walk donations are much appreciated. Please help find a cure for my scleroderma family and I ...
Love, Hugs, Peace and Prayers
To learn more about the Scleroderma Foundation, please visit national.scleroderma.org today!
