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Scleroderma Foundation New England Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease. The mission of the Scleroderma Foundation New England is to help constituents make contact with each other through support groups, newsletters, and meetings; to provide education about scleroderma; and to promote and raise funds for medical research seeking the cause of and cure for scleroderma. We meet our mission through the support of volunteers, creating opportunities to connect our community, and the support of our constituents throughout New England. It is only through your support that we will reach our ultimate goal - to find the cure for this disease and relieve the suffering it causes to patients and their loved ones. Stepping Out to Cure Scleroderma New England Our Stepping Out events for 2021 will be virtual to ensure the safety of our community. We are excited to share our 2021 Stepping Out New England Virtual Walk on Saturday, June 26. June is Scleroderma Awareness Month and we challenge members of our community to create fun and inventive personal fundraisers, or "adventures" to help us meet our stepping out goals! Learn more
Chapter Support Group Meetings Find a support group in your area or connect with others by phone. Support Groups are currently meeting via ZOOM. Support groups are a great way to share information and provide encouragement to one another. Looking to start a new support group? Contact us! Click here for more information >> Click here to access presenters from past New England Patient Education Seminars. You can also view videos from our Stepping Out to Cure Cure Scleroderma Walks. Check it out!
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The New England BEACONCheck out articles and past editions of our newsletter, The New England BEACON, for information on research, SFNE activity updates, event information and more. |
About UsBoard of Directors Board Advisors Medical/Scientific Advisory Board |
Contact InformationExecutive Director: Anne Sweeney Office Mailing Address Phone: (978) 887-0658 |
Photo Gallery
Look through photo galleries from previous events held by our chapter.
Video Gallery
Watch videos on scleroderma, news events, and a few fun extras.
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