E-Newsletter Signup
THANK YOU!
Thank you to all who participated and raised funds for the 2021 Stepping Out to Cure Scleroderma Virtual Walk! Remember that it's not too late to donate. Click here to donate to a Stepping Out participant or team.
Keep the fun going on social media. Show us your crazy outfits and the unique ways that you participated. Post photos of you and your crew on social media with #MySteppingOutSelfieMN and #SteppingOutMN2021, and be sure to tag the chapter's social media accounts: Instagram, Twitter, and Facebook.
About UsOur Mission:The mission of the National Scleroderma Foundation is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma. Founded as a 501(c)(3) charitable organization in 1998 and supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by funding research to discover the cause, to understand the mechanism, and together, to overcome this disease forever. |
Contact Information: Scleroderma Foundation Minnesota Chapter Phone: (800) 722-4673 |
Chapter Advisory Committee: JoAnn Borden, Treasurer Medical Advisor: Dr. Jerry Molitor |
Submit Your Topic Suggestions!This fall, we will be hosting the annual Patient Education Conference virtually again in order to keep our staff, volunteers, speakers and attendees safe. Despite hosting this event online, we want to make sure that scleroderma patients and their guests get the most that they can out of this experience. That's why we're turning to all of YOU! We want to know which topics you want covered at this year's virtual conference and what would be most valuable for you. Please submit your topic ideas to Kris Maas at kmaas@scleroderma.org, or Alyssa Putzer at aputzer@scleroderma.org. We look forward to hearing your ideas!
Announcing the Karen Bryan Memorial Scholarship FundIt is with heavy hearts that we announce the passing of long-time support group leader and Scleroderma Warrior, Karen Bryan.After being diagnosed in 2001, Karen continued to find joy in new activities, like kayaking, yoga and ZUMBA. She loved attending concerts and traveling with her husband, Bob. They attended the National Patient Education Conference in Philadelphia in 2018 and they loved to spend winters in Florida. Karen never lost her passion for living, despite the many challenges that scleroderma threw at her.We miss her dearly, but we will be inspired by her example forever. In honor of Karen and her passion for scleroderma education and awareness, we would like to announce the Karen Bryan Memorial Scholarship Fund. This fund will raise money to provide scholarships for scleroderma patients to attend the annual National Patient Education Conference. If you are interested in donating to the Karen Bryan Memorial Scholarship Fund, please make checks payable to the Scleroderma Foundation - MN Chapter with notation to the Karen Bryan Memorial Scholarship Fund. We appreciate your generosity and donation to Karen's legacy! |
|
Gold Corporate Sponsors