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Conference 2018 Youth ParentsAbout Kids Get Scleroderma, Too!

A Virtual Conference for Parents and Guardians of Children Who Have Scleroderma

October 23, 2021

The 2021 Kids Get Scleroderma, Too! conference (KGS2) is geared toward educating parents and guardians with up-to-date information to help them best navigate their child’s disease.

To relieve the pressure of yet another virtual meeting for children, youth are not the primary participants this year.

This conference is free. The one-day, virtual event takes place Saturday, October 23 from 11 a.m. to 3 p.m. Eastern Time. 

Register at national.scleroderma.org/2021KGS2.

KGS2 works closely with leading pediatric rheumatologists, who present essential information to help families navigate their scleroderma journey and find their best path forward in an environment that promotes new connections. 


KGS2 Kids Get Scleroderma Too logo SFPROGRAM SCHEDULE
October 23, 2021

11:00 a.m.
Opening Welcome

11:05 a.m. - 11:35 a.m.
Overview of Disease (breakout rooms)
• Localized: Natalia Vasquez-Canizares, M.D.
• Systemic: Katie Moore, M.D.

11:35 a.m. - 12:00 p.m.
COVID Update: Kathryn Torok, M.D.

12:00 p.m. - 12:05 p.m.

12:05 p.m. - 12:30 p.m.
Common Complications and General Health Guidelines (breakout rooms)
• Localized: Suzanne Li, M.D.
• Systemic: Kathryn Torok, M.D.

12:30 p.m. - 1:00 p.m.
Update on Pediatric Scleroderma Research (breakout rooms)
• Localized: Suzanne Li, M.D.
• Systemic: Kathryn Torok, M.D.

1:00 p.m. - 1:15 p.m.

1:15 p.m. - 1:45 p.m.
Transitioning from Pediatric to Adult Care: Vidya Sivaraman, M.D.

1:45 p.m. - 2:55 p.m.
Pediatric Research Survey (breakout rooms)
• Localized
• Systemic

2:55 p.m. - 3:00 p.m.
Closing Remarks

3:30 p.m. - 5 p.m. 
Paint Party for Youth Ages 10 to 17 


KGS2 Virtual Paint Party 2021Meet Up Paint Party for Youth 10 to 17 years
Saturday, October 23, 2021 3:30 - 5 p.m. Eastern Time

Youth who have scleroderma, ages 10 to 17, and their siblings, will participate in a very special virtual meet up paint party. The last 18 months have been difficult, and seeing your friends hasn’t been easy, so grab your brush and get ready for this fun and interactive Halloween-themed paint party. FREE and open to international participants. Catch up with your friends and learn from two very special guests: Maggie Sepkowitz, LCSW and Jill Blitz, PT, DPT, ATP. All registered participants will receive a paint kit with all necessary supplies in the mail. Maximum limit of two paint kits per household. 

Meet Up Paint Party registration is closed.
Questions: SFinfo@scleroderma.org