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Education Events

Scleroderma Education Days

The Scleroderma Foundation hosts various educational events for individuals who have scleroderma, and their family members and caregivers throughout the year. Many of these events are run by our chapters and support groups. To find an event near you, contact your local chapter or support group.

National Scleroderma Conference

2021 National Scleroderma Conference LogoThe 2021 virtual National Scleroderma Conference, Connect & Thrive Together, took place July 17 & 18. Although the COVID-19 pandemic appeared to be on the decline, a virtual conference was the best option to protect vulnerable members of the scleroderma community. The virtual conference provided access to vital scleroderma information and experts, and to others affected by the disease. The Foundation was extremely pleased at how well attended and how well received the virtual conference was; however, we are happy to announce that we plan to conduct the 2022 conference in person, July 15-17, in Bellevue, Washington. Stay up to date by submitting your email address here.

The Scleroderma Foundation's National Scleroderma Conference brings together leading scleroderma experts from around the world to educate and connect with individuals affected by scleroderma. Typically held in a different city in the United States each year, the National Conference is one of the largest gatherings for the scleroderma community. It includes panel discussions, workshops, and other activities to help answer your questions about the disease. Sample workshops and discussion topics include:

  • Advances in Basic and Clinical Research
  • Caregiving: Caring for Yourself While Caring for Another
  • For Males with Scleroderma Only
  • Managing GI Involvement in Scleroderma
  • Overlapping Conditions in Systemic Sclerosis
  • Scleroderma 101
  • Surgical Options for Hand Involvement
  • and many others**

Conference attendees also can meet with vendors in our exhibit hall, attend a welcome networking dessert reception, and meet with high-profile scleroderma physicians, researchers and other health care professionals in a one-on-one environment. The conference is an excellent opportunity to meet new friends and discuss ways to cope with the disease the a supportive, positive environment.

Learn more about the National Scleroderma Conference

**Please note that these titles are examples only. If you attend the conference, the program book will contain the actual listing of topics and workshops.

KGS2 Kids Get Scleroderma Too logo SFThe Foundation also offers the Kids Get Scleroderma, Too! (KGS2) conference for youth, ages 5 to 17, who have scleroderma, and for their parents or guardians and siblings. The 2021 KGS2 conference takes place online, on October 23. Enter your email address here to receive updates when programming information is available.

Scleroderma Virtual University

Virtual University

The Scleroderma Foundation's "Virtual University" Patient Education Series was a series of exciting webinars, live meetings, workshops, and Scleroderma-related education videos offered during 2020 in place of the in-person National Scleroderma Conference. Watch video recordings of the 2020 summer series and the fall series.

Pediatric Scleroderma Education

Learn more about the Foundation's juvenile scleroderma education program

African-American Scleroderma Education Day

In 2014, the Scleroderma Foundation hosted its second educational event dedicated solely to the African-American community. The Foundation partnered with scleroderma experts from Johns Hopkins University Medical Center and Georgetown University Medical Center to host this important event.

Find out more about the African-American Scleroderma Education Day

Physician and Continuing Education Courses

doctor workshop at 2011 conferenceThe following continuing medical education (CME) and continuing education (CE) courses are available for health care professionals about scleroderma and related diseases:

Click here to go to our CME page