Advocate Resources

Advocate Resources


(Recorded Videos)

Webinar 1: Grassroots Advocacy Overview (10/23/17)

  • Vision, Mission and Goals
  • Equipping Advocates through Grassroots Efforts
  • Spreading the Word

Webinar 2: Preparing and Sharing your Elevator Speech (11/27/17)

  • Preparing your Elevator Speech
  • Opportunities/Missed Opportunities
  • Teachable Moments
  • Examples

Webinar 3: Using Your Voice to Advance Research and Improve Care: Tips for Effective Advocacy and Congressional Outreach (12/11/17)

  • Presented by Philip Goglas II and Dane Christiansen of Health & Medicine Counsel of Washington (HMCW)

Webinar 4: Effective Public Speaking (1/22/18)

  • Gestures and Body Language
  • Speaking to Diverse Audiences
  • Visual Aids and Props
  • Talking to Elected Officials

Webinar 5: Using Your Voice to Meet with an Elected Official (2/26/18)

  • Sit in on a mock meeting that's just like the ones patient advocates have in the offices of Congress members. This small group of advocates will likely include a patient who had undergone stem cell therapy, a parent or caregiver of a child with scleroderma, a patient who uses a medical device and an advocate who works in a chapter. Excellent opportunity to see what the day is all about.


CONTACT:  Send an email to to ask questions or to request more information. Additional resources are below to assist you in your advocacy activities:

An Online Guide to the Legislative Process >>

Tips to Talk to Elected Officials >>