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NATIONAL DAY OF ACTION – JUNE 29, 2020

(A virtual advocacy activity to respect social distancing and to keep our promise to people with scleroderma.)

Speak up for scleroderma on Monday, June 29!

WHAT'S INVOLVED? >CLICK HERE<

National Day of Action Activities

  • Watch recorded advocacy training webinar.
  • Call the offices of your Senators and Representative on Monday, June 29, 2020, to make specific asks that you will learn about on the training webinar.
  • Connect with your Representative's office for a virtual meeting on Monday, June 29, 2020.
  • Connect with your Senators' offices for a virtual meeting on Monday, June 29, 2020.

Join thousands of others across the country on the National Day of Action to ask members of Congress to support bills important to the scleroderma community. Watch the training video (below), and you are ready. There’s no cost to participate. The bills important to the scleroderma community are budget neutral and have both Republican and Democrat support.

As one advocate has said, adding your voice to this effort isn’t political, it’s personal. 

2018 CHD Group at Rep Beatty Office 2An effective Action Day advocate is...

  • A registered voter (if 18 or over).
  • Affected by scleroderma, whether yourself or a loved one.
  • Someone who can tell her/his story about living with scleroderma succinctly.
  • Willing to talk openly with lawmakers about how scleroderma has affected your life.
  • A good listener.

The National Scleroderma Foundation’s Advocacy Program and 2020 National Day of Action are sponsored in part by grants from Actelion and Boehringer Ingelheim.

 
National Sponsors
 
Platinum Corporate Sponsor

       Janssen
 

Gold Corporate Sponsors

Boehringer Ingelheim Plain
 

Horizon Therapeutics logo