Learn About Scleroderma
Know more. Feel better.
The fear of the unknown can make a scleroderma diagnosis that much worse. While there is no cure for scleroderma yet, the cure for the unknown is right here: information, and lots of it. Whether you have scleroderma or you are a friend or family member and/or a caregiver, you can learn more about scleroderma. There is helpful content for those who have scleroderma, particularly those newly diagnosed as well as information oriented toward caregivers and friends.
If you are a healthcare professional seeking to learn more about scleroderma, go to our healthcare professional site.
Check out our Youtube channel for educational videos.
Helpful Products
Daily tasks can be difficult for people with scleroderma. Here are some products* that our members have found helpful. Do you have a product that has helped you? Please send us the information at cochapter@scleroderma.org.
*The Scleroderma Foundation Rocky Mountain Chapter in no way endorses or recommends the products.
Items to Assist:
Nonin 8500 - Hand held pulse oximeter with ear clip sensor www.turnermedical.com
UPWalker upright walker – standard size - Available on Amazon
ROHO Mosaic Inflatable seat cushion 18” x 16” (has interconnected air cells that you can adjust firmness) - Available on Amazon
Travel inflatable bed wedge pillow – ObboMed HR-7620; to prop up upper body for those with reflux - Available on Amazon
Sammons Preston 21.25” Folding Reacher Aid/Grabber tool – Available on Amazon
No tie shoelaces: Xtenex; www.xtenex.com
Active Glove - https://www.brownmed.com/product/imak-compression/active-gloves/
Vive Button Hook - Zipper Pull Helper - Available on Amazon
Vive Dressing Stick with Zipper Puller (27 Inch) - Available on Amazon
Vive Sock Aid - Easy On and Off Stocking Slider - Available on Amazon
Vive Long Handled Shoe Horn (23 Inch) and Sock Remover - Available on Amazon
Keywing Key Turner Aid (Triple Pack) Makes keys easy to Find, Grip & Turn - Available on Amazon
Able Life EZ Doorknob Grips - Available on Amazon
Foam Tubing Grips to Make Built Up Utensils Handles - Available on Amazon
Items to Keep You Warm:
Battery power heated clothes - www.mobilewarming.com; heated glove liners, jackets and socks shown below.
REVIX Microwavable Heated Mittens- Available on Amazon
Swittens Wool Mittens - https://www.swittens.com/store/c1/shop
Sunbeam Heated Blanket - Available on Amazon
Heating Pad for Neck and Shoulders - Available on Amazon
Dr. Frederick's Original Grippy Arthritis Gloves for Women & Men - Anti-Slip Compression Gloves for Arthritis Pain Relief – Available on Amazon
ViGrace Winter Touchscreen Gloves for Men Women Anti-Slip Touch Screen Warm Lined Knit - Available on Amazon
Vornado Electric Whole Room Space Heater – Available on Amazon
REVLON One-Step Hair Dryer And Volumizer Hot Air Brush – Available on Amazon
GUM Stimulator – Available on Amazon
GUM - 650R Soft-Picks Advanced Dental Picks – Available on Amazon
Listerine UltraClean Access Flosser - Available on Amazon
Sulcabrush Handle – Available on Amazon
Footware:
LIGHTEN Unisex Garden Clogs Shoes Slippers for Men Women – Available on Amazon
Munro shoes for narrow feet - https://munroshoes.com/collections/narrow-feet
Under Armour Sandals – Available on Amazon
Kitchen/Miscellaneous:
Handy tool for chopping Garlic - GarlicZoom Garlic Chopper and Peeler Set
For cutting bagels: Bagel Guillotine - Available on Amazon
EZ Off Jar Opener - Under Cabinet Jar Lid & Bottle Opener - Available on Amazon
HOME-X Small Bottle Opener with Magnifier, Ergonomic Cap Opener - Available on Amazon
EZ Grip 360 Degree Rotary Stainless Steel Sharp Blade Fingernail Toenail Clipper, Trimmer And Cutter – Available on Amazon
Sur La Table Ratchet Mill - https://www.surlatable.com/sur-la-table-ratchet-mill/PRO-3830296.html
Electric Jar Opener – Available on Amazon
Kitchen Mama Electric Can Opener – Available on Amazon
Rotary Cheese Grater – Available on Amazon
Instant Pot Duo 7-in-1 Electric Pressure Cooker – Available on Amazon
Tervis Tumblers – Available on Amazon
Hydro Flask Water Bottles – Available on Amazon
Exercise
Recumbent Tricycle eBike
Hacks from people living with scleroderma:
Use the rubberised grip shelf liner to open bottles.
Tape a small curved scrub brush to an old broom handle to scrub in the corners and along the walls while seated – no bending over.
Websites for helpful products:
https://youcanhomemedical.com/ - You Can Home Medical is your one-stop shop to bring wellness home.
Article from The Mighty - 12 Helpful items for Raynaud’s - https://themighty.com/2018/12/raynauds-syndrome-products-helpful/?utm_source=pin_board_chronic_illness&utm_medium=pinterest&utm_campaign=pin_chronic_illness_Week49