Advocate Resources
GRASSROOTS ADVOCACY TRAINING
(Recorded Videos)
Webinar 1: Grassroots Advocacy Overview (10/23/17)
- Vision, Mission and Goals
- Equipping Advocates through Grassroots Efforts
- Spreading the Word
Webinar 2: Preparing and Sharing your Elevator Speech (11/27/17)
- Preparing your Elevator Speech
- Opportunities/Missed Opportunities
- Teachable Moments
- Examples
Webinar 3: Using Your Voice to Advance Research and Improve Care: Tips for Effective Advocacy and Congressional Outreach (12/11/17)
- Presented by Philip Goglas II and Dane Christiansen of Health & Medicine Counsel of Washington (HMCW)
Webinar 4: Effective Public Speaking (1/22/18)
- Gestures and Body Language
- Speaking to Diverse Audiences
- Visual Aids and Props
- Talking to Elected Officials
Webinar 5: Using Your Voice to Meet with an Elected Official (2/26/18)
- Sit in on a mock meeting that's just like the ones patient advocates have in the offices of Congress members. This small group of advocates will likely include a patient who had undergone stem cell therapy, a parent or caregiver of a child with scleroderma, a patient who uses a medical device and an advocate who works in a chapter. Excellent opportunity to see what the day is all about.
CONTACT: Send an email to advocacy@scleroderma.org to ask questions or to request more information. Additional resources are below to assist you in your advocacy activities: