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Week 26 |
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Week 27 |
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Event Detail | |
Sunday Sit-Down | |
Facebook Live The Lower Great Lakes Chapter will host a Sunday Sit-down on Facebook Live hosted by Lucille Miller on the last Sunday of every month. https://www.facebook.com/CURESCLERODERMAOHIO |
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May 26, 2024 1:00 PM | |
Event Detail | |
Spring Global Webinar: Advances in Scleroderma Research | |
Zoom Advances in Scleroderma Research Global Webinar The webinar series provides a venue to bring together the global scleroderma research community to hear the latest breakthroughs from the field. |
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May 31, 2024 9:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Boardman Fun Walk (Lower Great Lakes Chapter) | |
Boardman Park, 375 Boardman Poland Rd, Boardman, OH 44512 To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5222&pg=entry |
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June 1, 2024 8:30 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Manhattan (Tri State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5332&pg=entry |
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June 1, 2024 9:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma York (Mid-Atlantic Chapter) | |
John Rudy Park To learn more and register online, please click here >> TR?fr_id=5202&pg=entry |
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June 1, 2024 9:30 AM | |
Event Detail | |
Utah Support Group | |
Zoom Utah Support Group Meets on the 1st Saturday of every month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/86806730209 |
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June 1, 2024 10:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM Unete al Grupo Bilingue de Apoyo de la Fundacion Nacional de Esclerodermia en nuestro evento virtual Embarazo en Esclerodermia. |
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June 1, 2024 11:00 AM | |
Event Detail | |
Utah Support Group | |
Zoom Utah Support Group Meets on the 1st Saturday of every month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/86806730209 |
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June 1, 2024 10:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM Unete al Grupo Bilingue de Apoyo de la Fundacion Nacional de Esclerodermia en nuestro evento virtual Embarazo en Esclerodermia. |
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June 1, 2024 11:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Ridgefield Park NJ (Tri State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5342&pg=entry |
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June 2, 2024 9:00 AM | |
Event Detail | |
Southern Colorado Support Group | |
ZOOM Southern Colorado Support Group: The virtual Zoom meetings occur on the first Sunday of every month. Time: 3:00 p.m. 5:00 p.m. MT Anyone is welcome to join the meeting |
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June 2, 2024 3:00 PM | |
Event Detail | |
#TealTalk Young Adult Panel | |
Join us on June 6, 2024, at 2p ET, for our first 2024 Teal Talk with a Young Adult Panel focused on working, dating and parenting while living with scleroderma. Our panelists are Nikhil Bhat, Amanda Lippincott, and Sade Taylor. During your registrati... |
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June 6, 2024 2:00 PM | |
Event Detail | |
Young Adult Support Group Ages 18-30s | |
Virtual Young Adult Support Group Ages 18-30s Email Amanda Lippincott, Alippincott@scleroderma.org, for meeting details. Tri-State Chapter (Connecticut, Northern New Jersey, and New York) virtual anyone in the U.S. 1st Thursday of each month at 7:30 pm |
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June 6, 2024 7:30 PM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma - Indiana Walk (Lower Great Lakes Chapter) | |
Lake County Indiana Fairgrounds To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5232&pg=entry |
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June 8, 2024 - June 8, 2024 | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Salt Lake City (Rocky Mountain Chapter) | |
Liberty Park, 1113 S 700 E., Salt Lake City, UT 84105 To learn more and register online, please click here >> TR?fr_id=5252&pg=entry |
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June 8, 2024 8:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Rochester (Tri State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5352&pg=entry |
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June 8, 2024 9:00 AM | |
Event Detail | |
Denver Mile High Support Group | |
Zoom Denver Mile High Support Group Meets on the 2nd Saturday of every month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/89658999581 |
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June 8, 2024 10:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM ZOOM ?nete al Grupo Biling?e de Apoyo de la Fundaci?n Nacional de Esclerodermia en nuestro evento virtual Esclerodermia Juvenil. |
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June 8, 2024 11:00 AM | |
Event Detail | |
Denver Mile High Support Group | |
Zoom Denver Mile High Support Group Meets on the 2nd Saturday of every month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/89658999581 |
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June 8, 2024 10:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM ZOOM ?nete al Grupo Biling?e de Apoyo de la Fundaci?n Nacional de Esclerodermia en nuestro evento virtual Esclerodermia Juvenil. |
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June 8, 2024 11:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Binghamton (Tri State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5353&pg=entry |
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June 9, 2024 9:00 AM | |
Event Detail | |
Newly Diagnosed Support Group | |
Newly Diagnosed Support Group ZOOM: 7 p.m., Eastern, 2nd Wednesday of the Month Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one wa... |
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June 12, 2024 7:00 PM | |
Event Detail | |
#TealTalk Stem Cell Transplants & Scleroderma | |
Join us on June 13, 2024, at 2p ET, for our second #TealTalk as part of Scleroderma Awareness Month. This session features a discussion on stem cell transplants and scleroderma. | |
June 13, 2024 2:00 PM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Denver (Rocky Mountain Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5302&pg=entry |
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June 15, 2024 7:30 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Lilburn, GA (Southeast Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5422&pg=entry |
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June 15, 2024 8:00 AM | |
Event Detail | |
2024 Deer Island Stroll and Stepping Out to Cure Scleroderma (New England Chapter) | |
Deer Island To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5212&pg=entry |
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June 15, 2024 9:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma - Detroit Stampede and Carnival (Upper Great Lakes Chapter) | |
Troy High School To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5242&pg=entry |
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June 15, 2024 9:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Rockland NY (Tri-State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5362&pg=entry |
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June 15, 2024 9:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM ?nete al Grupo Biling?e de Apoyo de la Fundaci?n Nacional de Esclerodermia en nuestro evento virtual Fatiga en Esclerodermia. |
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June 15, 2024 11:00 AM | |
Event Detail | |
Florida Virtual Support Group | |
ZOOM Third Saturday monthly at 11:00am - 1:00pm - Via Zoom. Email/call support group leaders for meeting information. |
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June 15, 2024 11:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma - Detroit Stampede and Carnival (Upper Great Lakes Chapter) | |
Troy High School To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5242&pg=entry |
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June 15, 2024 9:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Rockland NY (Tri-State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5362&pg=entry |
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June 15, 2024 9:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM ?nete al Grupo Biling?e de Apoyo de la Fundaci?n Nacional de Esclerodermia en nuestro evento virtual Fatiga en Esclerodermia. |
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June 15, 2024 11:00 AM | |
Event Detail | |
Florida Virtual Support Group | |
ZOOM Third Saturday monthly at 11:00am - 1:00pm - Via Zoom. Email/call support group leaders for meeting information. |
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June 15, 2024 11:00 AM | |
Event Detail | |
Miami Marlins Day at the Ballpark Scleroderma Awareness Event | |
Miami Marlins Join us at the ballpark! On June 18, 2024, we're celebrating Scleroderma Awareness Month at the Miami Marlins vs. St. Louis Cardinals baseball game at the LoanDepot Park. |
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June 18, 2024 6:00 PM | |
Event Detail | |
Bereavement Support Group | |
ZOOM ZOOM: 7 p.m., Eastern, monthly on the third Tuesday. If you are interested in learning more, please email support@scleroderma.org |
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June 18, 2024 7:00 PM | |
Event Detail | |
Morphea/Localized Scleroderma Support Group | |
Localized Support for Adults and Parents Group ZOOM: 7 p.m., Eastern, Tuesday, 3rd Tuesday of Month If you're interested in learning more or joining, please email localizedSG@scleroderma.org. |
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June 18, 2024 7:00 PM | |
Event Detail | |
#TealTalk What's Exciting in Scleroderma Research | |
In this session, we will delve into the latest breakthroughs and advancements in scleroderma research, catering to both pediatric and adult patients | |
June 20, 2024 2:00 PM | |
Event Detail | |
Texoma Chapter (Texas and Oklahoma) | |
Virtual Texoma Chapter (Texas and Oklahoma) Virtual Support Group Support Group Leader: Debbie Charlton Email: dcharlton@scleroderma.org Monthly, every 3rd Thursday at 7 pm CT |
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June 20, 2024 8:00 PM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Minnesota (Upper Great Lakes Chapter) | |
Wolfe Park To learn more and register online, please click here >> TR?fr_id=5282&pg=entry |
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June 22, 2024 8:00 AM | |
Event Detail | |
Bilingual Support Group | |
ZOOM ?nete al Grupo Biling?e de Apoyo de la Fundaci?n Nacional de Esclerodermia en nuestro evento virtual Farmacovigilancia. |
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June 22, 2024 11:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Albuquerque (Rocky Mountain Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5312&pg=entry |
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June 23, 2024 8:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Albany (Tri-State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5373&pg=entry |
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June 23, 2024 5:00 PM | |
Event Detail | |
Northern Colorado Support Group | |
Zoom Northern Colorado Support Group Meets on the 4th Saturday of every even month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/86587960297
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June 26, 2024 10:00 AM | |
Event Detail | |
New Mexico Scleroderma Support Group | |
ZOOM Meets the 4th Wednesday of every month 6:30 p.m. https://us02web.zoom.us/j/84234044219 |
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June 26, 2024 6:30 PM | |
Event Detail | |
New Mexico Scleroderma Support Group | |
ZOOM Meets the 4th Wednesday of every month 6:30 p.m. https://us02web.zoom.us/j/84234044219 |
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June 26, 2024 6:30 PM | |
Event Detail | |
LGBTQ+ Support Group | |
ZOOM ZOOM: 7 p.m., Eastern, monthly on the fourth Wednesday If you are interested in learning more, please email support group leader Mary Forte with questions, LGBTQ@scleroderma.org. |
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June 26, 2024 7:00 PM | |
Event Detail | |
The 20%: A Virtual Support Group for Males Living with Scleroderma | |
Virtual Meets the fourth Wednesday of the month (with some exceptions) from 7 p.m. to 8 p.m. ET. https://us02web.zoom.us/meeting/register/tZ0lduqgrT8uE90vkt0PnohbMpJmVbOw21Cg |
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June 26, 2024 7:00 PM | |
Event Detail | |
LGBTQ+ Support Group | |
ZOOM ZOOM: 7 p.m., Eastern, monthly on the fourth Wednesday If you are interested in learning more, please email support group leader Mary Forte with questions, LGBTQ@scleroderma.org. |
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June 26, 2024 7:00 PM | |
Event Detail | |
The 20%: A Virtual Support Group for Males Living with Scleroderma | |
Virtual Meets the fourth Wednesday of the month (with some exceptions) from 7 p.m. to 8 p.m. ET. https://us02web.zoom.us/meeting/register/tZ0lduqgrT8uE90vkt0PnohbMpJmVbOw21Cg |
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June 26, 2024 7:00 PM | |
Event Detail | |
#TealTalk Self-Care Toolkit | |
Join us on June 27, 2024, at 2p ET, for our fourth and final 2024 #TealTalk for a Self-Care Toolkit experience. Our speakers will include Janet Poole, PhD, OTR/L, and Meghan Thomas, a young adult living with scleroderma. |
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June 27, 2024 2:00 PM | |
Event Detail | |
Caregivers Support Group | |
Caregiver Support Group ZOOM: 7 p.m., Eastern, 4th Thursday of Month For more information, email support group leader Debbie Haussler at caregivers@scleroderma.org. |
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June 27, 2024 7:00 PM | |
Event Detail | |
2024 Rocky Mountain Adventure (Rocky Mountain Chapter) | |
Virtual To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5402&pg=entry |
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June 29, 2024 12:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma Long Island (Tri-State Chapter) | |
To learn more and register online, please click here >> TR?fr_id=5372&pg=entry |
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June 29, 2024 9:00 AM | |
Event Detail | |
IV Jornada Internacional de Esclerodermia | |
Virtual En conmemoraci?n del D?a Mundial de la Esclerodermia, la Fundaci?n Nacional de Esclerodermia y la Asociaci?n Civil Esclerodermia y Raynaud de Argentina lo invitan a la IV Conferencia Internacional de Esclerodermia |
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June 29, 2024 11:00 AM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma - Wisconsin (Upper Great Lakes Chapter) | |
To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5382&pg=entry |
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June 29, 2024 4:30 PM | |
Event Detail | |
2024 Stepping Out to Cure Scleroderma - Wisconsin (Upper Great Lakes Chapter) | |
To learn more and register online, please click here >> https://national.scleroderma.org/site/TR?fr_id=5382&pg=entry |
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June 29, 2024 4:30 PM | |
Event Detail | |
Sunday Sit-Down | |
Facebook Live The Lower Great Lakes Chapter will host a Sunday Sit-down on Facebook Live hosted by Lucille Miller on the last Sunday of every month. https://www.facebook.com/CURESCLERODERMAOHIO |
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June 30, 2024 1:00 PM | |
Event Detail | |
Young Adult Support Group Ages 18-30s | |
Virtual Young Adult Support Group Ages 18-30s Email Amanda Lippincott, Alippincott@scleroderma.org, for meeting details. Tri-State Chapter (Connecticut, Northern New Jersey, and New York) virtual anyone in the U.S. 1st Thursday of each month at 7:30 pm |
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July 4, 2024 7:30 PM | |
Event Detail | |
Utah Support Group | |
Zoom Utah Support Group Meets on the 1st Saturday of every month Time: 10 a.m. 12 p.m. MT https://us02web.zoom.us/j/86806730209 |
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July 6, 2024 10:00 AM | |
= Open
= RSVP
= Ticketed
= Recurring