Scleroderma
Monday, June 30, 2014
By: Pixie Elia
"I'm so sorry for anyone that gets this disease."
It was in October 2012 I was diagnosed with Systemic Sclerosis by Dr. Sanz
at Emory in Atlanta GA. I have never heard of this. I never thought I would be
getting a death sentence! This disease is very PAINFUL I was told I might live
5 years. It was already in my esophagus and full gastrointestinal track. I was
treated by a port followed by Antibodies, and cut of my Immune System with the medication
CELLCEPT, but then my Husband lost his job. All treatment stopped because
I no longer had insurance. Now I have gone from 118 to now 84lbs since December
of 2013. I have the worst pain all over mainly in my stomach and breathing
problems. It has also torn my rotator cuff in my left shoulder which the
doctors will not touch because I will not heal. I'm suffering every day I
wake up. I'm always throwing up, with diarrhea. I've tried to get my disability
but my husband now only makes half of the pay, but since he chose to find
another job which he did and he makes $197.00 more than the law says so yet
again I am denied SSI benefits. I'm suffering everyday that I'm awake. I
have asked my husband to donate my body to Scleroderma research. I'm so sorry for
anyone that gets this disease.
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