My Music is My Therapy
Tuesday, June 17, 2014
By: Selena Johnson
It is my intent to inspire and uplift others through my music.
My name is Selena Johnson and I am 35 years old. I was
diagnosed with Systemic Scleroderma on July 24, 2003. I was diagnosed
three years after my mother, Debra Johnson, passed away from Systemic
Scleroderma on November 14, 2000. My mother had a very aggressive form of
Scleroderma and passed away from it in 3 years of her diagnosis. I was
her caretaker and it was devastating and traumatic to watch her suffer from
this debilitating illness. It was even more traumatizing when I was
diagnosed 3 years after her death. My journey with Scleroderma has not
been easy. However, I remain positive. I continue to demonstrate a
strong will to live and manifest victory in accomplishing my endeavors. I
am a children’s social worker holding a BA in Psychology and Masters
Degree in Social Work. I am also very creative, as I am a singer/song
writer. My music is my therapy and helps me through this illness.
It is my intent to inspire and uplift others through my music. Music
runs in my family…I am the daughter of George Johnson of the 1970’s grammy
award winning funk duo “The Brothers Johnson.”
In February of 2013, I suffered from a hemorraghic
stroke as a result of pulmonary hypertension and atrial fibulation. By
the grace of a higher power, I have survived without any brain damage. I
recently found out that I am pregnant with my first child. I remain
positive and look forward to this journey and how my body reacts to the
production of relaxin in my system.
I have recently become more involved with the Scleroderma Foundation, as I recently attended Bob Saget’s “Cool Comedy and Cuisine”
fundraiser at the House of Blues in the Mandalay Bay hotel Las Vegas on June 5.
I had the opportunity to meet Bob Saget, Bill Bellemy, Seville Kellner
and Charles Spaulding. I am also participating in a Scleroderma
walk-a-thon on June 22 in Van Nuys/Sherman Oaks Park in California. My
team “November Kis” will walk in honor of my mother and myself (as well those
who continue to live with Scleroderma).
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